Home: Indigenous Cancer Care: Indigenous Data

Where to Find Research, Data, and Stats?

ArcticStat
ArcticStat is a public and independent statistical databank dealing with the countries, regions and populations of the Circumpolar Arctic. Data sources include government agencies, as well as other public and private sources.
BC NEIHR
A five-year program supporting research leadership among Indigenous (First Nations, Métis and Inuit) communities, collectives and organizations (ICCOs).
Cancer and American Indians/Alaska Natives
Statistics from the US Department of Health and Human Services Office of Minority Health.
Cancer Care Ontario Cancer Facts
Monthly fact sheets on cancer and First Nations, Inuit, and Métis populations in Ontario.
FNIGC: First Nations Data Centre
FNDC offers data access to individuals pursuing academic research, policy development, and program planning and evaluation on a pay-per-use basis. The data cannot be used for commercial purposes.
Statistics on Indigenous Peoples
Data collected, compiled, analyzed, and published by Statistics Canada.
Two-Spirit Dry Lab
A research group that works to promote wise practices in sex and gender research and to grow new knowledge(s) that can be applied to improve outcomes for Two-Spirit and other Indigenous people.

Indigenous Data Governance

The specifics of data governance differs for each community and should be determined by the Indigenous community or communities that you are working with. Below are some resources that can help you facilitate this process.

First Nations Information Governance Centre
The First Nations Information Governance Centre (FNIGC) is a non-profit organization that helps First Nations communities achieve data sovereignty.
FNIGC: OCAP®
The First Nations principles of OCAP® are a set of standards that establish how First Nations data should be collected, protected, used, or shared. They are the de facto standard for how to conduct research with First Nations.
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OCAP® respects that rights of First Nations communities to own, control, access, and possess information about their peoples is fundamentally tied to self-determination and to the preservation and development of their culture.

This is why anyone interested in conducting research with a First Nation should acquaint themselves with OCAP® before they begin. A good place to start would be The Fundamentals of OCAP® course, an online course developed by FNIGC in conjunction with Algonquin College that provides a comprehensive overview of the history of OCAP® and its applications in research and information governance today.